I just had my infusion last Thursday and I feel like I haven't even had it. Thankfully the pain isn't constantly severe, but there are definitely moments where it really spikes and catches my breath, even brings a tear to my eye. I have constant pain that is the high end of moderate level. I have a high pain tolerance as I have said before, but this is really taking a tole on me.
With a constant higher pain level, it really fatigues me and my brain. You get to the point where you can't think straight. I get very frustrated with not being able to think clearly. I forget things easily and often can't think of simple words that I have used almost every day of my life.
When things get like this I can't keep up with what is normally simple everyday tasks. Emails stack up because I don't have the mindset to be able to respond. Phone calls get ignored and messages remain unanswered. I save any energy I have for my husband and kids, but even that is very scarce.
I had to approach my Dr about increasing my pain medications because I just can't take it anymore. He was willing to increase my dosage, but only for 2 weeks rather than the month I am normally prescribed, so that means making another appointment while I am not doing well, not to mention the fact that we have so much else going on already. I start to feel overwhelmed with the calendar filling in so quickly, especially knowing that my energy level is so low and pain level is so high.
I love this season and this time of year, I even love the snow as my area hardly ever gets it...but I am really ready for this winter storm to move on.
I hope everyone is staying warm and is not being hit too hard by Jack Frost. Thanks again for stopping by and have a great day.
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