Sunday, February 2, 2014

Rheumatoid Arthritis Awareness Day...also known as Super Bowl Sunday

Today is Rheumatoid Arthritis Awareness Day, but as it is also Super Bowl Sunday the awareness day got a bit lost in the chaos. Also a lot of the promotors and creators of the RA awareness day are on the east coast and did everything morning time their time, which equals way too early morning Pacific time which is where I am. I was a bit sad to not be able to take part in the live chats and other events.

I try to think of anyday and everyday as Rheumatoid Arthritis Awareness Day. That's what my blog and my Facebook page are all about. I can't go through a single day without RA reminding me it's in my life to stay, so I try to share with others to raise awareness. 

Yesterday I went to a good friends wedding. It was a beautiful day and so glad I could be apart of their wedding. There were a few difficulties for me though. I knew I would have to use my wheelchair to make it through the day. We get to the Chapel and it is a gorgeous historic building built in 1884. First problem no ramp. Thank heavens I am still able to walk, but stairs are really difficult for me and even harder when in a flare. I can't imagine how hard it is for my husband to haul my chair up the stairs. I don't like the attention I draw when in my chair either and boy oh boy nothing draws more attention then hobbling up stairs while hubby is hefting wheelchair behind lol. 

I made it in and it was so worth it. Wow what a stunning building. Beautiful chandelier when you first walk in, original tin walls and ceiling, beautiful stained glass windows. It is small and quant and perfect for my friends day. The chapel managers comes up to me and says how she always feels so bad for people in chairs when they come here and apologizes. She talks to us some about the building and I'm glad I got a little inside information. 

The reception is held in another location at a community center. We arrive a little late so the two handicapped parking spots are already taken. Thankfully we are using my manual chair today instead of the electric, no ramp needed for getting it in and out of the car. This building has a ramp thank goodness, but it is steep and long and poor hubby has to push me the whole way. He says it's no big deal he loves helping me, but I know it's painful for him, he has severe osteoarthritis in his knee. 

I had a wonderful time at their wedding, but today my pain and fatigue have kicked in full force. It's frustrating that to go and do something fun that I know my body will make me pay for it in return. I have to always plan a week of rest before and after a big event like this. Some things will take a little less time, but I always have to make sure to get some recovery time after anything I do. 

Today I am relaxing and watching the Super Bowl. I have to admit I am not a football fan. My brother in law always made us watch football and he's a huge 49ers fan so when I was younger I chose the Seahawks to mess with him and I have always liked the underdog :) well now my team is in the Super Bowl. 

Here are the thoughts of a non football fan...I really still do not understand the game, first off a commercial staring bad lip reading Yes! Amazing! Second Ellen's beats commercial I totally love it, note to self must get Ellen blue Beats...now the game why do so many dudes all have to pile on top of each other? There is more butt tapping and ass grabbing in football than in a low rate porn, what's with that? 

I hope everyone is having a great day, as always thanks for reading my blog. 


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